Global Perspectives on Decision-Making, Measurement, and Participation of Children with Disabilities

Brief outline (Detailed outline)

While environments and resources for physical therapy practice differ around the globe, children with disabilities and their families often have similar goals. A framework for clinical decision-making is presented and applied to measurement and interventions for particpation of children with disabilities using case examples from developed and developing countries.

Objectives

• Examine opportunities and perceived barriers to implementing clinical decision making models, for children and families living in developed and developing countries.
• Evaluate and choose clinical measurements of body structure/function and activity for clinical decision making related to young children with cerebral palsy.
• Apply research and best practices to interventions for participation in the home and community by children and youth with cerebral palsy.

Organiser 

Sarah Westcott McCoy (United States of America)

Academic credentials: 1973 - 1976: Bachelor of Science, University of Montana, Missoula, MT 1976 - 1979: Master of Physical Therapy, University of Washington, Seattle, WA 1989 - 1993: Doctor of Philosophy, Behavioral Neuroscience Program, University of Washington, Seattle, WA.  Position/appointments: Associate Professor, Department of Rehabilitation Medicine, University of Washington, Seattle, WA, USA.  Teaching/presentations: Teach pediatric PT coursework for DPT students, motor control for PhD students, and mentor PhD and Post Doctoral students in research and teaching; Present widely on the topics of postural control examination, intervention, research design, and motor control related to pediatrics.  Publications: 4 manuscripts and 9 book chapters published or in press; Over 70 scientific or educational presentations.  Research: Dr. McCoy's research focuses on examination and intervention for postural control dysfunction in children with cerebral palsy and developmental coordination disorder, development of tests and measures for body structure/function, and use of clinical practice improvement design to study pediatric interventions.  Professional practice: Serves children within the University of Washington Experimental Education Unit.  Membership/honors: Member of the American Physical Therapy Association (APTA) (and the Section on Pediatrics [SoP), the World Congress of Physical Therapy, and a Fellow of the American Academy for Cerebral Palsy and Developmental Medicine. Dr. McCoy serves on the Editorial Board of Physical and Occupational Therapy in Pediatrics, and reviews manuscripts for numerous journals.  She serves on the Executive Committee of the SoP and received the Research Award and Bud Dehaven Distinguised Service Award from the SoP.

Speakers

Robert Palisano (United States of America)

Robert Palisano, PT, ScD is Professor, Drexel University, Philadelphia, PA, USA and Investigator, CanChild Centre, McMaster University, Hamilton, ON, CA. He is a physical therapist, educator, and researcher. He was an investigator for study of activity and participation of children with cerebral palsy funded by the Shriners Research Foundation and is an investigator of an international study on determinants of gross motor function and playfulness of children with cerebral palsy funded by the National Institute of Disability Rehabilitation Research (USA) and the Canadian Institutes of Health Research.  Dr. Palisano is Co-Editor of the journal Physical & Occupational Therapy in Pediatrics and Associate Editor of the textbook Physical Therapy for Children.  Honors and Awards: Anniversary Award, Section on Pediatrics, APTA, 2008.  Golden Pen Award, APTA, 2005.  Gayle G Arnold Award for Excellence in the Care of Children with Cerebral Palsy, 2003.  Research Award, Section on Pediatrics, APTA, 1997.  Selected Publications: Palisano RJ, et al. Social and Community Participation of Children and Youth with Cerebral Palsy is Associated with Age and Gross Motor Function Classification. Physical Therapy, 89: 1304-1314, 2009
Palisano RJ, et al. Family Needs of Parents of Children and Youth with Cerebral Palsy. Child: Care, Health & Development, 36(1): 85-92, 2009.  Palisano RJ, et al. Content Validity of the Expanded and Revised Gross Motor Function Classification System. Developmental Medicine and Child Neurology, 50:744-750, 2008.  Palisano RJ, Copeland WP, Galuppi BE: Performance of Physical Activities by Adolescents with Cerebral Palsy, Physical Therapy, 87:77-87, 2007.

Dale Scalise-Smith (United States of America) 

Dale Scalise-Smith, PT, Ph.D. received her BS. degree in physical therapy from Northeastern University; a MS degree in physical therapy with a specialization in maternal child health from the University of North Carolina at Chapel Hill and a PhD in early intervention and special education from the University of North Carolina at Chapel Hill.  She is currently Dean of the School of Health Professions and Education and a Professor in the department of Physical Therapy at Utica College. She is the educational program chair of the International Organization of Physical Therapists in Pediatrics, a subgroup of the World Confederation of Physical Therapy. She has served on the American Physical Therapy Association (APTA) Committee on Chapters and Sections, the APTA Program Chairs Committee (chair 2 years), APTA Scientific Meeting and Exposition Committee, and the APTA Tellers Committee. She was Program Chair for the Section on Pediatrics of the APTA from 1997-2006. She was the recipient of the Bud DeHaven Award from the Section on Pediatrics. She was also a member of the III STEP International Conference Committee. She has co-authored numerous publications in peer-reviewed journals, and written 3 book chapters. She has presented at national and international levels. She remains active in clinical practice through her international humanitarian efforts in Albania.

Hilda Mulligan (New Zealand) 

Hilda F. Mulligan, PT, MHSc received her BSc. degree in physical therapy from the University of Cape Town, South Africa; a MHSc  Otago University, New Zealand, and is enrolled in a doctoral program at Otago University.  She is currently a lecturer in the School of Physiotherapy at Otago University. She taught as a guest lecturer to schools of physiotherapy and hospitals across Vietnam.  She is currently a member of the executive board of the International Organization of Physical Therapists in Pediatrics, a subgroup of the World Confederation of Physical Therapy. She is a member of the Paediatric and Neurology Special Interest Groups of the New Zealand Society of Physiotherapists.   She serves as an expert advisor to the Health and Disability Commissioner for physiotherapy in paediatrics and is an examiner for the School of Physiotherapy on behalf of the New Zealand Physiotherapy Board for oversees trained physiotherapists. She was the recipient of the Houston Medical prize for the best case study submitted to New Zealand Journal of Physiotherapy in 2004. She has authored 12 publications in peer-reviewed journals and presented at numerous national and international conferences.

Doreen Bartlett (Canada)

Academic credentials: 1979: Bachelor of Science in Physical Therapy, Queen's University, Kingston, Ontario, Canada 1992: Master of Science in Physical Therapy, University of Alberta, Edmonton, AB, Canada 1997: Doctor of Philosophy, Rehabilitation Science, Edmonton AB, Canada.  Position/appointments: Associate Professor, School of Physical Therapy, The University of Western Ontario; Associate Member, CanChild Centre for Childhood Disability Research, McMaster University, Ontario, Canada.  Teaching/presentations: Teach the Pediatrics component and a course on critical appraisal of research evidence to support Physical Therapy practice in the School of Physical Therapy.  Present widely in the area of infant motor development and motor function of children and youth with cerebral palsy.  Publications: 56 manuscripts published or in press; over 100 conference or invited presentations.  Research: Dr. Bartlett's research focuses on early motor development of infants born full-term and preterm, and early development of children with cerebral palsy.  Professional practice: not currently in practice.  Membership/honors: A member of the Canadian Physiotherapy Association (and the Pediatric Division), the World Congress of Physical Therapy, and a Fellow of the American Academy for Cerebral Palsy and Developmental Medicine. Dr. Bartlett serves on the Editorial Boards of Pediatric Physical Therapy and Physical and Occupational Therapy in Pediatrics, where she also serves as the "Evidence-to-Practice" Column Editor.  Dr. Bartlett received the Margaret Findlay-Vatcher Award from the Pediatric Division of CPA for her contributions to Pediatric Physical Therapy in Canada in 2003. From 2007-2009, she was a Faculty Scholar in the Faculty of Health Sciences at Western.

Lisa Chiarello (United States of America)

Lisa Chiarello, PT, PhD, PCS is an associate professor Drexel University, Philadelphia, PA. As a clinician, educator and researcher, she advocates for family-centered care and promoting children's self determination and their participation in meaningful life activities.  Select Presentations: Supporting Motor Development, Self-care and Play of Preschool Children with Cerebral Palsy: Implications for Clinical Decision Making. Workshop APTA CSM, Las Vegas, NV. Bartlett D, Chiarello L. 2009.  Select Publications: Chiarello L, et al. (2009). Factors related to adaptive behavior in children with cerebral palsy. Journal of Developmental Behavioral Pediatrics, 30(5), 435-441.  Palisano RJ, Kang, LJ, Chiarello et al.. (2009) Social and community participation of children and youth with cerebral palsy. Physical Therapy, 89(12), 1304-1314.  Orlin M, Palisano R, Chiarello L, et al. (2010). Participation in home, extracurricular, and community activities among children and youth with cerebral palsy.  Developmental Medicine Child Neurology, 52, 160-166.  Chiarello L, et al. (2009). Family priorities for activity and participation of children and youth with cerebral palsy. Physical Therapy, accepted.  Select Funding: Understanding the Determinants of Motor Abilities, Self-Care, and Play in Young Children with Cerebral Palsy. National Institute of Disability and Rehabilitation Research, PI. Canadian Institutes of Health Research, Co-Investigator, PI – Doreen Bartlett. 06-09.  Activity and Participation of Children with Cerebral Palsy, Shriners’ Hospital, Co-Investigator, PI– Robert Palisano. 06 – 08.  Membership / Honors: APTA, Section on Pediatrics, Practice committee, Chair 2006-2010, Vice-chair 2010, Early Intervention Special Interest Group, Vice chair, 2010.  2008, Section on Pediatrics, Bud DeHaven Award.  1997, 2007 Pediatric Board Certified Clinical Specialist.

Lynn Jeffries (United States of America)

Academic credentials: 1987: Bachelor of Science in Physical Therapy, Oklahoma Health Sciences Center, Oklahoma City, OK 1994: Master of of Science in Pediatric Physical Therapy, Oklahoma Health Sciences Center, Oklahoma City, OK. 2003: Doctor of Philosophy, Allied Health Science, Oklahoma Health Sciences Center, Oklahoma City, OK.  Position/appointments: Associate Professor, Director of The Doctor of Physical Therapy Program, School of Physical Therapy, Langston University, Langston, OK, USA.  Teaching/presentations: Teach pediatric PT coursework and the evidenced based practice content for DPT students, and have previously taught the early intervention content in a MS program for physical and occupational therapists.  Present widely on the topics of early childhood motor development, early intervention services, and service delivery approaches related to young children with disabilities.  Publications: 3 manuscripts in press and 3 book chapters published; Over 50 scientific or educational presentations.  Research: Dr. Jeffries research focuses on motor development in children with cerebral pals, rehabilitation sciences in early intervention programs and use of clinical practice improvement design to study pediatric interventions.  Professional practice: Provides consultive services for children in the state’s early intervention program.  Membership/honors: Member of the American Physical Therapy Association (APTA) (and the Section on Pediatrics), the World Congress of Physical Therapy, and a Fellow of the American Academy for Cerebral Palsy and Developmental Medicine. Dr. Jeffries serves as a reviewer for Physical and Occupational Therapy in Pediatrics.  She is the practice chairperson for the Section on Pediatrics, and reviews manuscripts for numerous journals. 

Margo Orlin (United States of America)

Margo N. Orlin PT, PhD is an Associate Professor in Physical Therapy and Rehabilitation Sciences at Drexel University, Philadelphia, PA. USA.  Dr. Orlin is a physical therapist and an experienced educator, researcher and clinician.  She was a co-investigator on the multi-site, multi-year Children's Activity and Participation Study funded by the Shriners Research Foundation.  She is the recipient of the 2007-2010 Ethel & Jack Hausman Clinical Research Scholars Award to study the biomechanics and participation of running in children with cerebral palsy.  Dr. Orlin has a scientific staff member appointment to Shriners Hospital for Children in Philadelphia where she conducts her research. She is an Associate Editor for the 4th edition of the textbook Physical Therapy for Children.  Honors/Memberships: The 2010 Anniversary Award, Section on Pediatrics, American Physical Therapy Association
American Physical Therapy Association: Chair, Section on Pediatrics Communications Committee; Member, Continuum of Care Task Force.  American Academy for Developmental Medicine and Child Neurology.  Selected Presentations: Orlin MN, Davis I, Laibsironon S.  Ground Reaction Forces & Kinetics of Running in Children with Cerebral Palsy Compared to Children with Typical Development.  APTA Combined Sections Meeting, February, 2010.  Orlin MN, Chiarello LA, Kang LJ, Palisano RJ, Polansky M, Almasri N, Maggs J.  Participation among children with cerebral palsy.  American Academy for Developmental Medicine and Neurology, September, 2009.  Orlin MN, Palisano RJ, Chiarello LA, Maggs J, Polansky M, Almasri N, Kang, LJ Participation in home, extracurricular and community activities among children and youth with cerebral palsy.  APTA Combined Sections Meeting, February, 2008.  Selected Publications: Orlin M, Palisano RJ, Chiarello L, Kang LJ, Polanky M, Almasri N, Maggs J. Participation in Home, Extracurricular, and Community Activities among Children and Youth with Cerebral Palsy. Developmental Medicine and Child Neurology, 52: 160-166, 2010.  Palisano RJ, Kang LJ, Chiarello L, Orlin M, Oeffinger D, Maggs J. Social and Community Participation of Children and Youth with Cerebral Palsy is Associated with Age and Gross Motor Function Classification. Physical Therapy, 89: 1304-1314, 2009.  Palisano RJ, Almasri N, Chiarello L, Orlin M, Begley A, Maggs J. Family Needs of Parents of Children and Youth with Cerebral Palsy. Child: Care, Health & Development, 36(1): 85-92, 2009.  Chiarello LA, Orlin M, Almasri N, Palisano R: Coping in Young Children with Cerebral Palsy.  Pediatric Physical Therapy,20:101, 2008.  Selected Funding: Running Biomechanics and Participation of Children with Cerebral Palsy.  Ethel & Jack Hausman Clinical Research Scholars Award, 2007-2010. Funded by the Cerebral Palsy International Research Foundation.  Children's Activity and Participation Study.  Funded by Shriners Research Foundation.  2005-2008.  Robert J. Palisano, Principal Investigator.

Barbara Connolly (United States of America)

Barbara Connolly, PT, DPT, Ed.D.,FAPTA received her BS degree in physical therapy from the University of Florida; a DPT degree from the University of Tennessee; a MEd degree in special education with a minor in speech pathology and an EdD in curriculum and instruction from the University of Memphis. She holds the UTNAA Distinguished Service Professorship at the University of Tennessee Health Sciences Center and currently holds the position of Interim Dean in the College of Allied Health Sciences at the University of Tennessee. She also holds an adjunct appointment in the Graduate School of the University of Indianapolis. She is the President of the International Organization of Physical Therapists in Pediatrics, a subgroup of the World Confederation of Physical Therapy. She has served on the APTA Board of Directors, the APTA Pediatric Specialty Council and the American Board of Physical Therapy Specialists. She was President of the Section on Pediatrics of the APTA from 2002-2006. She received the Bud DeHaven Leadership Award, the Research Award and the Jeanne Fischer Distinguished Mentorship Award from the Section on Pediatrics. In 2002, she received one of the highest honors from the APTA as a Catherine Worthingham Fellow. She is first author of 29 publications in peer-reviewed journals, has written 21 book chapters and has coauthored seven textbooks. She is NDT and SI certified. She has presented over 100 invited lectureships at national and international levels. She continues to provide professional development courses across the United States and remains active in clinical practice.

Maria Nijhuis-Van der Sanden (Netherlands)

Maria W.G. Nijhuis-Van der Sanden, PT, PhD received her BSc. degree in physical therapy from St Maartenskliniek, Nijmegen; an Educational master ‘Management in the non-profit sector’ at HAN University of Applied Sciences, Nijmegen; and a PhD from Radboud University, Nijmegen, the Netherlands.  She is currently Professor and chair of the Allied Health Sciences Department at Radboud University and serves as head of the department of Pediatric Physical Therapy at University Children’s Hospital, Nijmegen. She is Treasurer of the International Organization of Physical Therapists in Pediatrics, a subgroup of the World Confederation of Physical Therapy. She is a member of the council for Education and professional training in the East region of the Netherlands, a cooperation between Radboud University Nijmegen Medical Center, regional hospitals, and regional educational institutes. She has served as the Secretary of the scientific committee of the Dutch Society of Pediatric Physical Therapy and Secretary of the Dutch Society for Follow-up in Premature Born Infants, a subgroup of the Dutch society of Pediatrics.   She was President of the Dutch Society of the Heads of Physical Therapy Departments and a delegate of the regional board of the Royal Dutch Society for Physical Therapy to negotiate with National Health Assurance Companies and the National Advisory Board.  In 2007, she received a Radboud commendation from University Children’s Hospital, Radboud University. She has co-authored of 37 publications in peer-reviewed journals, written 10 book chapters and co-authored four books. She has presented over 80 juried and invited presentations at national and international conferences.

Nihad Almasri (United States of America)

Nihad Almasri, PT, PhD is a Pediatric Physical Therapist and she will join University of Jordan as an Assistant Professor in Faculty of Rehabilitation Sciences-Department of Physical Therapy, Amman, Jordan in October 2010. She received her BS in Phsyical Therapy form University of Jordan in 2003, her MS in Rehabilitation Sciences from University of Pittsburgh, Pittsburgh, PA, USA in 2006, and her PhD from Drexel University, Philadelphia, PA, USA in 2010. Her research interests include understanding family needs of parents who have children/youth with cerebral palsy. She presented her work in national, and international conferences. During her PhD work (2006-2010), she was involved as a research assistant in two multi-site projects related to activity and participation of children with cerebral palsy funded by Shriners Research Foundation and determinants of motor abilities, self-care, and play of young children with cerebral palsy funded by the National Institute of Disability Rehabilitation Research (USA) and the Canadian Institutes of Health Research.  She was a teaching and research assistant in University of Jordan-Faculty of Rehabilitation Sciences (2003-2005). She is an active member in American Physical Therapy Association, Section on Pediatrics since 2006, and in the Jordaninan Association of Physical Therapy since 2003.  Selected presentations: - Almasri N, Palisano R, Dunst C, Chiarello L, O'Neil M, Polansky M. Determinants of Family Needs of Parents of Children and Youth with Cerebral Palsy. APTA Combined Sections Meeting, San Diego, CA, February 20, 2010. - Almasri N., Palisano R, Dunst C., Chiarello L, O’Neil M., Polansky M, (2009). Determinants of Needs of Families of Children and Youth with Cerebral Palsy. Archives of Physical Medicine and Rehabilitation Volume 90, Issue 10. Presented at American Congress of Rehabilitation Medicine Annual Conference(ACRM), Denver, CO, 2009. Almarsi N, Polansky M, Palisano, R, Chiarello L, Orlin M, Maggs J. Needs of Families of Children and Youth with Cerebral Palsy: Effects of age and gross motor function of children. Pediatric Physical Therapy, 21(1): 88, 2009. APTA Combined Sections Meeting, Las Vegas, NV, February 2009.  Almasri N, Palisano R.  Expressed Family Needs for Children and Youth with Cerebral Palsy. Presentation in Ontario Association of Children’s Rehabilitation Services Conference, Waterloo, Ontario, October 2008.  Selected Publications: Orlin M, Palisano RJ, Chiarello L, Kang LJ, Polanky M, Almasri N, Maggs J. Participation in Home, Extracurricular, and Community Activities among Children and Youth with Cerebral Palsy. Developmental Medicine and Child Neurology, 52: 160-166, 2010.  Palisano RJ, Almasri N, Chiarello L, Orlin M, Begley A, Maggs J. Family Needs of Parents of Children and Youth with Cerebral Palsy. Child: Care, Health & Development, 36(1): 85-92, 2009. Chiarello LA, Almasri N, Palisano RJ. Factors Related to Adaptive Behavior in Children with Cerebral Palsy. Journal of Developmental & Behavioral Pediatrics, 30(5):435-41, 2009.   Membership: The American of Physical Therapy Association- Section in pediatrics.

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