Cattlean, Anneli

Cattlean, Anneli
Country
Switzerland
Bio
Anneli Cattelan is mother of a 21 year old son with Duchenne muscular dystrophy.
She is the responsible contact person of the Swiss Muscular Dystrophy Society for affected parents since almost 15 years, has written a guideline on the daily handling of Duchenne muscular dystrophy and has achieved the introduction of the disabled pass for children in switzerland.
She is president of the association "Duchenne Switzerland" (www.duchenne-schweiz.ch)
The association's focus is on counselling in health care, family coaching, leisure activities and financial support.
During the discussion, she talks about her experiences with the daily family situations.